Differences
This shows you the differences between two versions of the page.
| Both sides previous revision Previous revision Next revision | Previous revision Last revision Both sides next revision | ||
|
privacy_interests_in_research [2016/07/14 11:03] wikiadmin [Proposed Rules] |
privacy_interests_in_research [2016/08/13 10:32] wikiadmin [Issues in Non-applicability Clause in RA 10173] |
||
|---|---|---|---|
| Line 85: | Line 85: | ||
| * "strict confidentiality" - does this mean having the same data security rules for research?\\ | * "strict confidentiality" - does this mean having the same data security rules for research?\\ | ||
| * Section 4(d) appears to provide a global "non-applicability" for research. But that doesn't sit well with the above provisions that are clearly about limited exception. Having a blanket exception does not necessarily help research because that will mean having a research regime incompatible at least with its North American and EU counterparts that extend privacy protection to research and data subjects alike. That can mean, in part, being excluded from multi-country research projects. There's also the risk of databases just being arbitrarily labelled as part of "research" in order to avoid privacy regulations. \\ | * Section 4(d) appears to provide a global "non-applicability" for research. But that doesn't sit well with the above provisions that are clearly about limited exception. Having a blanket exception does not necessarily help research because that will mean having a research regime incompatible at least with its North American and EU counterparts that extend privacy protection to research and data subjects alike. That can mean, in part, being excluded from multi-country research projects. There's also the risk of databases just being arbitrarily labelled as part of "research" in order to avoid privacy regulations. \\ | ||
| + | \\ | ||
| + | **Inclusion of Research in Privacy Coverage as Part of the International Norm**\\ | ||
| + | * EU [[http://eur-lex.europa.eu/legal-content/EN/ALL/?uri=CELEX%3A32016R0679|General Data Protection Regulation]] | ||
| + | * [[http://www.legislation.govt.nz/act/public/1993/0028/latest/whole.html|Privacy Act 1993]] (New Zealand) | ||
| + | * [[http://www.ipc.nsw.gov.au/sites/default/files/file_manager/privacy_statutory_guidelines_research.pdf|Statutory Guidelines on Research]] (Australia) | ||
| + | * [[http://www.ipc.nsw.gov.au/sites/default/files/file_manager/PID%20on%20Disclosure%20for%20Research%20-%20FINAL.pdf|Direction on Disclosures of Information by Public Sector Agencies for Research Purposes]] (Australia) | ||
| + | * [[https://www.oaic.gov.au/privacy-law/privacy-registers/privacy-codes/privacy-market-and-social-research-code-2014|Privacy (Market and Social Research) Code 2014]] (Australia) | ||
| + | |||
| + | \\ | ||
| + | |||
| --- | --- | ||
| Line 116: | Line 126: | ||
| ##See Also | ##See Also | ||
| - | * [[consolidated_workshop_outputs|Privacy Set of Rules (SOR)]] | + | * [[consolidated_workshop_outputs|Health Privacy Code]] |
| ##References: | ##References: | ||
| * Wiles,R., Prosser,J., Bagnoli A., Clark A., Davies K., Holland, S., Renold E., (2008). Visual Ethics: Ethical Issues in Visual Research. Retrieved from http://eprints.ncrm.ac.uk/421/1/MethodsReviewPaperNCRM-011.pdf | * Wiles,R., Prosser,J., Bagnoli A., Clark A., Davies K., Holland, S., Renold E., (2008). Visual Ethics: Ethical Issues in Visual Research. Retrieved from http://eprints.ncrm.ac.uk/421/1/MethodsReviewPaperNCRM-011.pdf | ||
| ---- | ---- | ||