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health_research [2016/08/15 11:24] wikiadmin created |
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| + | ##Health Research | ||
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| //Research Subject.//\\ | //Research Subject.//\\ | ||
| * The research participant shall be made to understand that he or she can opt-out of the study or have their personal information deleted from the project's database if they so request in writing. \\ | * The research participant shall be made to understand that he or she can opt-out of the study or have their personal information deleted from the project's database if they so request in writing. \\ | ||
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| * Audio or video recording of subjects will be transcribed and then destroyed to eliminate audible or visual identification of data. Collection of visual images shall be subject to patient's consent and identifiable information shall be removed or obscured.\\ | * Audio or video recording of subjects will be transcribed and then destroyed to eliminate audible or visual identification of data. Collection of visual images shall be subject to patient's consent and identifiable information shall be removed or obscured.\\ | ||
| * //Data Sharing.// Aside from the ones indicated in the study protocol and the original consent document, the research subject shall give his or her permission prior to data sharing arrangements. Data sets publicly made available shall have undergone thorough technical anonymization procedures and shall have been cleared for public access by a duly-constituted ethics committee. The risk of re-identification of study participants or data subjects should be low to none.\\ | * //Data Sharing.// Aside from the ones indicated in the study protocol and the original consent document, the research subject shall give his or her permission prior to data sharing arrangements. Data sets publicly made available shall have undergone thorough technical anonymization procedures and shall have been cleared for public access by a duly-constituted ethics committee. The risk of re-identification of study participants or data subjects should be low to none.\\ | ||
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| + | ##See Also | ||
| + | * [[Privacy Interests in Research]] - earlier discussion on the subject | ||
| + | * [[consolidated_workshop_outputs|Health Privacy Code]] | ||